Thursday, March 28, 2013

Gotta love the treatment bills


There is nothing like receiving mail from your health care provider.  Yes, it just warms your heart.  Especially the ones that begin "This is not a bill!"  It's there, at least with my health care where you see the cost of treatment? 

Since I am undergoing treatment, I see these bills regularly.  Most of the time they what I would call normal.  List of charges, what the insurance pays and  the column that says what I may owe.  Most of the time, it makes sense.

Then there is the statement of benefits I got last weekend,  It said that one of the charges was $151,000.  Then there was a code underneath it that says the insurance company will refuse it because the treatment hasn't been approved and is considered non traditional.  I don't understand this because the drug I am receiving, Yevory,   was approved by the FDA in 2011. I called the doctor's office who sent me to their central billing who said that they are in touch with the insurance company.  I said when will I know when it is settled.  They said when I get a bill.

Don't you just love it?

Sunday, March 3, 2013

Family Matters



My parents lived a comfortable life.  They had five children and lived in a middle class neighborhood in Meadville, Pennsylvania.  They were married for 37 and a half years. 

My father, Richard Blanchard, died in 1975 of Addison's Disease.  He was 60.  But mostly he died because he didn't go to the doctor.  He was stubborn that way.  I say this because it is my impression is that this disease was treatable.  The last time I saw him was in June, 1974 when I brought my first born, Sarah,  to visit my family in Meadville, Pennsylvania. 

My mother, Martha Blanchard, died in 2004 at 89.  She had a heart attack in 1988.  She lived alone.  It was February and  "felt strange"  so she called for an ambulance to take her to the hospital.  The hospital called me and I was on my way.  Did you know you can get from the Kirwan Heights  Exit of I-79 to Meadville in 1 hour and 15 minutes in an 81 Pontiac station wagon?  

Her heart attack was  followed by  quadruple by pass surgery.  The surgery was done in Erie because the Meadville hospital didn't do heart surgery.  She was a good patient.  She went to rehab.  She walked her dog.  She had a good attitude.  She took her medicine -- most of the time.  She had high cholesterol.  She developed emphysema as a result of years of smoking.  She quit  smoking sometime before all of this. 

In 2001 my mother had what was determined later  to have been a small stoke.  She fell and it took her 2 hours to get up.  Her doctor asked her how often her children dropped by.  None of us lived in town.  My oldest brother, Dick, lives in Sharon but at the time he was a long haul truck driver so he couldn't just drop by.  I lived  in Pittsburgh  with my new husband,  two kids and  my own business.    I called several times a week.  But that isn't face to face. 

We looked at independent living facilities and I didn't like anything that I saw.  They just looked like hospitals with better food.  My sister , Deana, told me that mom wanted to come and live with me.  I  talked to my husband about it and he said that his family didn't put family in homes.  What he said to me at the time was, "Be careful how you treat your mother, your children are watching." 

My mother lived the last 3 years of her life with me and Bob.  She had her own bedroom and a sitting room with her own TV and phone.  She made friends and went to church.  I was holding her hand when she died.  There isn't a day goes by that I don't think about her. 

So if your parents didn't have cancer, who did?

Let's start with my great-grandmother, Jane.  She died in  1961 when she was 90  and I was 12 years old.  When I was 8 or 9 , Jane showed me a line across where her breasts would have been.  But they were gone.  She had breast cancer.  She had gotten it in the 1950's.  I have been told by doctors that women who get breast cancer in their later life doesn't mean that I am in line to get the disease.  I was reassured by that one.

My aunt, Katy, developed cancer when she was 79.  I'm not sure where it started,  it may have been her lungs, but it metastasized to her brain and caused her a great deal of pain.   Katy spent her 80th birthday in the hospital.  She had a special water bed that helped with the pain.  After  a while, Katy  was moved from that room to anothermuch smaller room.  I have never been really fond on how I  thought the hospital treated my aunt.  I thought they kind of ignored her.  Just my impression.  Katy went to stay with my cousin, Ann,  after the hospital.  Ann and her husband, Frank were to travel to Meadville to get some papers and I was going to go to their house and sit with Katy.  But later that day,  Frank called me to say that Katy had died. 

Shortly before Katy died, my mother visited her in the hospital.   My dad and Katy's husband, Jim and died within a month of each other.  Over the years they had become quite close friends.  I will always remember Mom saying to Katy as she sat down, was who she was going to vote for (in the upcoming election).  I sat at the end of the hall crying because I knew it would be the last time my mom would see her.

My sister, Georgie, died in 2007 a month before her middle daughter, Charlotte, would be married.  She first developed breast cancer in the late 90s.  Georgie was in the Army when it wasn't popular and rose to the rank of captain.  She left the army after she got married.  It was because she was a Viet Nam era veteran that she went to the Atlanta VA Hospital for her treatments.  She would always tell me that the doctors wore two jackets.  One said VA and the other said Emory.  She was treated with radiation.  Something she told me that she wouldn't wish on her worse enemy.   I didn't think they still did radiation when she had it.  Her cancer went away for a while.  But it came back and this time one breast was removed.  I didn't know that there were different kinds of breast cancer until Georgie got cancer the second time.  I am not sure she ever really  recovered even with chemo.   The last time I saw Georgie she was on oxygen.  She was a smoker most of her life and over weight.  

Georgie's health really started to decline in early 2007 and I felt if I ever wanted to see her I had better get to Atlanta.  So in early February I called my niece, Martha, that if I showed up at the Atlanta airport would she pick me up?  She said yes and I could stay with her.  I went down on Friday and had dinner with Georgie, husband, Charlie, younger daughters Charlotte and Elizabeth at Martha's.  It was wonderful.  The next day, my sister, Deana came down from North Carolina.  We all went to Macy's and had pedicures.  Deana and I paid for it.  It was awesome!  To top it all off, we had dinner with our cousin, Patrice, at her house and had a great time.  Sunday, I had breakfast with Georgie, Charlie, Elizabeth and Martha at the Waffle House.  Then I went to Georgie's house to visit some more before I h ad to go to the airport. I cried all the way back to Pittsburgh.

Georgie died in hospice care surrounded by her family.  She was 63.    She was buried in the Georgia National Cemetery.  Georgie and I shared a bedroom as kids growing up.  We got our learner's permit at the same time but  I got my license first.  In fact when Georgie finally decided to get her license I used to be the one to ride around with her and took for her driver's test.  When Georgie and Charlie got married I was maid of honor.  When I got married the first time, Georgie was my matron of honor.  I think of her often. 

My uncle, Joe, my mother's brother died October, 2011. He was 85 years old.  During his lifetime he beat cancer twice that I can recall at this time. I think there were two more times, but I don't remember when. I  do remember that when we were all at my grandmother's memorial in July, 1990  that his face was all red.  He said at the time he was being treated for skin cancer.  The second time was prostate cancer.  The idea that a person could have cancer multiple times and come out the other side was an inspiration.   My cousins. Susan and Patrice, held a memorial for Joe last May.  It was done with Masonic honors and very moving.  Many of us spent the weekend in Meadville driving around our old haunts and sharing memories . 

My cousin, Patrice was a life coach, yoga instructor and an award winning writer who spent most of her adult life in Atlanta.  Patrice had  presence that surrounded her that was hard to explain.  In September, 2012,  our family lost Patrice to cancer.  Patrice had breast cancer and as a result had a double mastectomy.  She had been cancer free for several years when the disease came back and attacked her liver.   I had seen Patrice in May and she looked great so I was very surprised when I learned that cancer had returned.  Patrice had a support system of very wonderful friends who made sure that she never felt alone.

Sunday, February 24, 2013

Welcome!


My name is Mary Pam Kilgore and I am a cancer patient.  I  have  melanoma that has become metastatic.  That means melanoma that gone to other parts of my body. 

But I am more than my disease.  I am a wife, a mother to two grown children, Sarah and Sebastian.  I am a daughter, sister, aunt, niece, cousin, friend and business owner.  I  volunteer.  I  mentor. 

I like going to the movies with my friends and my husband, Bob.  I love music. I  love dancing even though  I'm not very good at it. 

The way I have set  this blog site up is to follow along with what is going on with me and my treatments currently.  But as someone said, you can't  know where you are going until  you were you have been.

So like those health forms that you fill out every time you see a different doctor we will start at the beginning with family members.